

The American Epilepsy Society (AES) meeting is the largest epilepsy meeting of the year, and because it takes place every month of December it also serves as an annual review on the understanding and treatment of epilepsies. These are my main insights from the American Epilepsy Society 2024 meeting.
For the past ten years the Loulou Foundation hosts an annual meeting where scientists and drug developers working on CDKL5 deficiency, together with representatives from patient organizations, meet to discuss the latest advances.
Here are the main news and take-home messages from the 2024 CDKL5 Forum that took place in October 28-29 in Boston
This is a scientific summary of the 2025 CDKL5 Alliance patient conference celebrated in Rome. The CDKL5 Alliance is the umbrella organization bringing together national CDKL5 deficiency patient associations as well as affiliated organizations like the Loulou Foundation. The summary covers the scientific updates presented during the conference in June 2025.